We left for Houston on Wednesday. I think I slept the whole way. Almost anyway. We were able to actually get to my aunt's and uncle's at a decent hour. We visited with them for awhile, it's always nice catching up with them. My aunt makes the best meals (sorry mom). So dinner every night was very nice. Thursday I had test, after test, after test. Some people think all I do is sit around in doctor's offices and wait. On test day's I literally am called to the back the moment I pick up my book. Grrr. I run from test to test. I pretty much sleepwalk actually. No running is actually involved. I sleep during every test every time. Some think that's nuts and how can I sleep through all that, but when you have had as many tests that I have, it's just natural. On test days I usually go back to my aunt's and uncle's and pass out. Which I promptly did. Then Friday is the fun day. I get to see the doctors and get results of tests. See, like I said, fun.
The results weren't horrible, but weren't good. My heart decreased in function, that was the news from my cardiologist. Then a couple tumors increased in size but it also looks like they could have been growing and then are about to respond to treatment. So my oncologist is going to give it two more months, then I go back for retesting and if anything has grown or appeared then we will try a different treatment. The heart problem has me going back in a month. I guess if my hear efr decreases anymore then we have to terminate the treatment and talk of anymore options. And steadily wearing a dress every day :)
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| This isn't the same day as in Houston but I did wear this same outfit on Saturday. I have yet to upload pictures. |
I wasn't going to get into this kind of stuff on this blog but I find it hard not to. So, onto Madisyn. Madisyn has been having funky blood work for a couple months now. Maybe more, I can't remember. We have been repeating it to see if it was a fluke or if it stayed steady. Well it stayed steady. I don't really understand what's going on yet. Her pediatrician is sending us to a specialist at New Orleans Children's Hospital where the only doctor is who see's children in the area. What's his specialty? I don't know. This we found out on the day we left for Texas and I'm not worrying. Until I know what's going on I really don't know what to worry about. All I know is her doctor said "I did all the tests I can do. We did the Lupus test and it came back negative. I'm sorry, Shannon." I put quotes but suddenly realized I don't remember the exact way she said it anymore. Basicly she apologized because she wasn't able to find out what it is, so it's something worse. Apparently Lupus was kind of, what we wanted it to be? Okay, like I said, I don't know. Then when the nurse called to give me the information about the hospital and what number to call, etc, she ended it with "good luck". So all of that put together has me confused and just going with the flow for now. So just keep her in your prayers. In one way I'm kind of happy we find the cause of her getting sick all the time.
So back to dresses and red lipstick :)
Confession time. I didn't wear makeup today. I didn't do my hair. It's the day after chemo so there's a lot of things I don't do this day. Here's a picture of July 9th's day after chemo. They are all pretty much like that but today wasn't as bad as that day. I didn't wake up until three so that may be why :)
Shannon
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